I gained...

[Cheryl Anna]

On Tuesday-I went to see my neurologist about my Cerebellar Ataxia. I was weighed first-102 from 98 in October. Being 5 foot 8 1/2", I like the extra four pounds. It must be all the pizza I've been eating. Did you know-you can order from PIZZAHUT.COM and use the coupons that you get in the newspaper? I've been doing that a lot lately.

[cotton]

Did you know-you can order from PIZZAHUT.COM

I did that for the first time about a month or 2 ago. It is way to easy. I love their new Pizza Dippers. Yum! I also love their cheese, pepperoni, and veggie pizzas. Yum! Yum!

[carreyd away]

Congrats on the weight gain! (can't believe I'm saying that)

Being 5'8" and weighing 98 lbs is unfathomable... I'm 5'10" and was sick once, went down to 134 lbs and you could see all the bones poking through my shoulders and on my sternum. Wish I could say that was still true

[mav]

Cheryl - I looked up 'cerebellar ataxia' and found that I actually knew this disorder, but didn't know it was called so. I dont know how you deal with it. I hope you have a caring family. If you dont mind, can I ask - when/how did it occur ?

[Canadian Jayne]

Cheryl tell him your web site, i've forgotton it, sorry.
Have you updated anything on it lately.
Great that you have gained, I've lost, I had a liquid diet for a few days,
takes the energy right out of you but now I feel pretty good,

PIZZA PIZZA now has wholewheat pizza, finalement!
I love wholewheat pizza.

[quirky]

Cheryl - do they have the hot wings where you are. I used to LOVE to get the mild hot wings with the blue cheese dipping sauce.

Congrats on the weight gain! Although, I feel like carreyd away does.

[carreyd away]

Cheryl tell him your web site, i've forgotton it, sorry.

http://hometown.aol.com/cherylshasta/myhomepage/profile.html

[mav]

Thanks carreyd away! Canadian Jayne, I'm a her

Cheryl - I think the NAF website should accept contributions online (instead of having to contact them by email). I'll email them suggesting so.

[Canadian Jayne]

I'm totally embarassed
I just assumed from the name, when I think of Maverick, I think of
the movie.
I actually enjoyed the movie "Maverick"

[Cheryl Anna]

I have Cerebellar Ataxia, and it is genetic (my younger brother also has it). Neither of us expected it: there is no history of it in our family, and Steven (my younger brother ) was mis-diagnosed with Cerebral Palsy when he was nine.
As for me-it began gradually. It started with mild staggering, mostly when I was tired or over-stressed, when I was 17. I even have home movies of me when I was 19, and I can't see any of the Cerebellar Ataxia symptoms in those videos.I went to college, even though the staggering continued.
When I was 23, and after I graduated, I found out through a C.T. scan of my brain that my cerebellum was smaller than a normal one. The neurologist told me that I had a progressive degenerative handicap (I had him show me why my cerebellum was smaller than average-and he showed me "the grooves shouldn't be that apparent."
I began to use a walker, but that became precarious-I was falling a lot-so I use a wheelchair now.

[Cheryl Anna]

The illnesses that cause "ataxia" are listed on this informative website. I think that they are the very best website for "ataxia" information, and I have told them so:


http://www.bcataxia.org

[Cheryl Anna]

I have tried the new pizza dippers-that's good.
I have not tried their wings yet, but I will-that sounds good.

[Cheryl Anna]

From 17-35-I fluctuated from 84-91 pounds. My Cerebellar Ataxia also comes with digestive problems and tremors. My new neurologist, that I've had for the past 5 years put me on NAC (a liquid supplement that I take when I eat), and AMATADINE, which helps with the tremors and also makes my speech more understandable.
I was so happy when I finally gained weight-that I cried. Still, whenever I gain a pound or two I am so happy.

[mav]

No problem, Canadian_Jayne!

Cheryl, I read your posts. I was thinking about you and to hear that your brother has it has made me utterly sad. We all have personal hells, but it is such a relative term. Sometimes I feel there is no such thing as help. There can only be sharing and understanding.

Stem cell research does look promising. I've always been inspired by Christopher Reeves and the work he did. He is a true hero. In my books, so are you.

[Canadian Jayne]

This is such a hard burden and (many of us on here, I believe)wish we could all make it go away for you, but we can't, we can pray, donate to
the cause, tell others about it, cry with you, just care, help you to plan
you're trip to Florida.
Often when I read my scriptures, I think of the Savior when he made
the lame walk, I wish he would do that for you. In time it could happen.
I just keep hoping. But for now, live and know that we care and we;re
trying to understand.
Only those who experience this can really only be the ones who truly
understand.